camden's therapist recommended we get "gross motor skills in children with down syndrome"...she said it's like her bible...so i promptly got onto amazon and bought it....and then amazon recommended i buy four other books (including "fine motor skills", "communication skills", "teaching reading" and "the roadmap to holland")....and so i did....and now every day since friday i have gotten a package in the mail....and the books are beginning to stack up....and the reading is beginning to become daunting....and camden is going to want to curl up into a little ball soon if i keep trying new tricks on him...so i have to remind myself that my new life has to be lived by the "one day at a time" philosophy...and it's hard...because i am a planner....and how do you plan for this? i guess my answer is that you can't...not the way i plan at least....and so i have decided to put away the books that can be read later...and to attack this one step at a time...one foot in front of the other...and to let camden do the planning....and i will just do the writing....and we will both put one foot in front of the other...until he can do it all by himself, without me having to place it there.
Tuesday, May 18, 2010
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Sometimes we get overwhelmed over what 'could' happen, instead of focusing on what 'is' happening, which is usually the more positive of the two! Our EI person brings a page or two from that first book, when it's applicable. That seems to work for us. Good luck :)
ReplyDeleteNow, that sounds like a very good plan. It's so easy to get lost in reading.....I too have all those books, and on occasion I will read a chapter or 2.....don't let it consume you......enjoy this time with little Cam, they grow too soon! He will definitely lead the way:)
ReplyDeleteLove your plan! I too have most of those books and started reading right away. I found myself overwhelmed. I don't think I've opened them in about a year. I will someday... maybe! Our sweet ones sure know how to lead the way!
ReplyDeleteYou are an amazing mother! Can I recomend just one more book to that already impressive reading list? "The Year My Son and I Were Born" by Kathryn Lynard Soper (of South Jordan, UT), chronicling the first year of her son's life. She has also edited a wonderful anthology called "Gifts". Please give them a look too!!
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