Sunday, December 19, 2010
Monday, December 13, 2010
Thursday, December 2, 2010
i have thought of this moment for a while now...every time a stranger asked to see my little guy i waited for this question...i wondered if it would sting, i wondered how i would respond, i wondered if i would cry.
but i surprised myself...i smiled, and answered: "yes, yes he does!" and then i waited for the sting...but it never came.
and then something more surprising happened...this vibrant woman sitting next to me, who i had only known for maybe five minutes, began to cry. they were silent tears, and as she wiped them away she looked at me and said " i have such a special place in my heart for these little kids, i know they were sent here to teach us how to love".
i didn't quite know what to do, or how to respond, so i just listened...and she went on to explain that her very good friend had a boy with down syndrome, who was now in his thirties, and how special he was, and her many other encounters.
she was then called back by the doctor, and i was left in the waiting room alone, with my little boy. and i waited for the emotions to come, and i wondered which would join me in that room...i didn't feel anger, i didn't feel sadness, i didn't feel jealousy...i felt blessed.
Monday, November 29, 2010
Saturday, November 20, 2010
Friday, November 19, 2010
Monday, November 15, 2010
Friday, November 12, 2010
Wednesday, November 10, 2010
Saturday, November 6, 2010
" So I was thinking today….about parenting….and being the right kind of parent to you. I am bringing this up so that you understand what type of parent I wanted to be from the start….before your cute little hands and toes cloud my better judgment and I want to keep them in impeccable condition forever….I know that being a parent will be the hardest thing I will ever do…and the most fulfilling…and I want to be the one that lets you bump into things here and there…because sometimes you need to…and sometimes reality isn’t always so easy to deal with…so dealing with it is the only way that you learn. I just keep thinking of Heavenly Father and the type of parent that he is…and being that freedom of choice is what this whole plan thing is all about , I can’t help but note that sometimes he lets me fall down….and so I should let you. because that’s really what a parent is for….not to catch you…but to pick you back up. So you might be reading this and laugh a little to yourself because I am sure at times I will want to jump in and save you and I will let my better judgment falter, but know that this was my intention for you….that I tried to be the best parent I could….that I put thought into it….but I know I’m only human, and well, you know what that means. And if at some point in the future I actually do my job….I am sorry that I allowed the world, or even yourself, to hurt you…I am sorry you had to understand and feel the pain of trial…but know it was not because I didn’t love you….it was because I did."
because now more than ever i am going to want to shield that little boy of mine, i am going to want to protect him from the world, only i know it isn't fair...and that the world needs him as much as he needs the world...and so at some unforeseen point in time...i am going to have to step back, even though it will be the hardest thing i have ever done...
"You, and your future siblings, are here for me….to teach me to love more fully, to be more compassionate to others, to show more charity, to help rid myself of pride, selfishness and fear. You are my greatest blessing in this life….you are here to help me to become the person that I was meant to become here on this earth, because no one else could ever teach me what you are here to teach me. You are not our trial, you are our reward."
Sunday, October 31, 2010
Saturday, October 30, 2010
"We often think that having a child with Trisomy 21 is like gaining membership to a secret club, a club you never knew you wanted to be in or even existed, but once you are in, you are so thankful that you were chosen."
Thursday, October 28, 2010
random fact about down syndrome #28:
monica and david
Wednesday, October 27, 2010
Tuesday, October 26, 2010
random fact about down syndrome #26: there are degrees of severity that come along with the diagnosis of down syndrome...the cause of the differences are unknown...each person has that same extra 21 and yet each person reacts to that extra bit very differently...i guess just like each person in general reacts differently to all of their chromosomes. it is difficult to see the range of function in children with down syndrome until the developmental process begins, and although a child might be slower in the development of fine motor skills they might develop gross right on schedule...or speech ahead of schedule...it really is up to that individual child, just like any other child.
Monday, October 25, 2010
random fact about down syndrome #25: the "politically correct" way of describing a person with down syndrome, or any disability for that matter, in the u.s. is to say "he/she has down syndrome" not "he/she is down syndrome" or "down's"...these little things don't really bug me, because i recognize there is no harm intended by it most of the time, and i too, before and a little after camden, didn't recognize this fact...but i understand now that it is about more than offense and so we try in our house to recognize that a person is not their disability.
Sunday, October 24, 2010
ps. a little boy turned 9 months old today...it makes me a little sad to think that he is three-fourths of a year.
random fact about down syndrome #24: i don't use capitalization on my blog...mostly because i like the informal feel...but if i were to use capitalization you would notice the "d" and not the "s" in capitals: Down syndrome.
Saturday, October 23, 2010
random fact about down syndrome #23: a family that has previously had a child with down syndrome has a one percent higher chance of having another child with down syndrome. one percent isn't really much...then again our chances of having camden were only .067%...billy and i have talked about this fact a few times, being that camden was our first, and well we would love to have more children...and without a doubt we will...that isn't really the question...the question lies more in "will we have the tests?"...and although this is still up for debate here and there in our house, it isn't because having another child with down syndrome scares us, it doesn't. it comes from the do we want to be prepared next time? and the more i think about it the more toward no i lean...because really how can you prepare for any child?
Friday, October 22, 2010
camden has been making a peace sign for the last week or so...adorable i know...but this morning he was doing it throughout his breakfast, and i was racking my brain to figure out where he learned to do it...and then i noticed the background noise...signing time. "this is the sign for water...can you sign water?" up went the peace sign while he stared at his little fingers...not quite water (which is three fingers bounced on your chin)...but so so close. now, i understand that this could have been a very cool coincidence, but we are going with it...and now every time i see those little fingers go up, they will be followed by a glass of water... not because i think he means it right now, but because i want him to mean it, and i know that if i stay consistent it will turn into intentional.
on another note...while practicing our four point again this morning...camden pushed himself into a sitting position. you should have heard the hoorays coming from his little bedroom...and mommy clapped, and camden clapped mommy's hands, and it was a good day.
random fact about down syndrome #22: although speech can be difficult for someone with down syndrome, mostly because of the lower muscle tone in their mouth, they are very good communicators...and since motor skills come before speech in the developmental process of things...most children with down syndrome are able to learn to sign to help bridge the gap in communication.
Thursday, October 21, 2010
Wednesday, October 20, 2010
Tuesday, October 19, 2010
Sunday, October 17, 2010
he brightens up my day every time i see that little face...
random fact about down syndrome #17: most infants and children with down syndrome in the united states are a part of early intervention programs...which include: physical, speech, occupational and other therapies. camden began early intervention at six weeks old...it is a blessing to know other people have camden's best interest in mind and that we as parents have help in helping him reach his goals and improve.
Saturday, October 16, 2010
Friday, October 15, 2010
random fact about down syndrome #15: down syndrome was named for the british doctor who noted the characteristic features in 1866, john langdon down...the actual chromosomal cause (that third 21st) was not found until 1959, by jerome lejeune.
Thursday, October 14, 2010
random fact about down syndrome #14...although they can light up your day with that smile of theirs...they aren't always happy. always being the key word. they experience every emotion possible...camden's latest...frustration...yes, with baby temper tantrums wrapped in there too. they know when they are being made fun of...and they can have their feelings hurt just like anyone else. they can feel lonely, sad, angry, frustrated along with feeling excited, love, loved, happy and contentment. all in all...they are human, in every sense of the word. is that not the most practiced dirty look on the face of the planet...i would like to blame it on his father's genetics, but since i have never seen billy give a dirty look, i am going to have to blame it on myself...because i am the queen of them.
but there is something extra special in that 21st chromosome, and although it means more doctor's appointments at times, and therapy, that little smile makes me thankful for his little bit of extra...
Wednesday, October 13, 2010
Tuesday, October 12, 2010
random fact about down syndrome # 12: people with down syndrome have become increasingly integrated into all aspects of society...they play sports, they attend high school and even college, they are involved in music, acting and art. they can do most everything any other person can do...including, in some cases, move out and get married. they very much have their own interests and can excel at them. they just need a little love and encouragement (just like anybody else), and although it might not be as quickly as other people, they can do most anything they set their minds to.